Patient and public involvement in health data science research – challenges and opportunities

Webinar: Tuesday 15th November 11am-12pm
Virtual Event (please note link will be sent following registration)

NIHR Incubator for Methodology

This session will bring together experiences and perspectives on the involvement of patients and the public in data science/data intensive health research.

There is an increasing recognition of the value of large scale data sources from health and social care settings. Consequently patients and the public have an important role to play in shaping the how, when and why of doing research with data that was not originally collected for research purposes. However there has been limited discussion to date around best practices in patient/public involvement in the health data science research arena or the associated challenges and opportunities.

The session will consist of four short talks from invited speakers with experience and knowledge from across research and funding contexts. We will end with a panel discussion and an opportunity for audience input.

Registration is free and open to anyone with an interest in the use of large scale data in health research. Patient and public representatives welcome.

Session contributors

Chairs:
Jenny Hewison and Kate Absolom (University of Leeds)

Speakers:
Silvia Bortoli, Senior Public Involvement Manager, National Institute for Health Research (NIHR)
Mhairi Aitkin, Ethics Research Fellow, Alan Turing Institute
Piotr Teodorowski, PhD researcher, University of Liverpool
Samaira Khan, Public Involvement and Engagement Manager, British Heart Foundation Data Science Centre